The Power of Teamwork: IPIF’s community support & how it helped make their campaign a success


The Incontinentia Pigmenti International Foundation (IPIF) has just launched their first successful Fabrily fundraising campaign! IPIF is a voluntary nonprofit organization whose mission is to encourage and support research on Incontinentia Pigmenti (IP), which is a genetic disease that affects the skin, hair, teeth, and central nervous system.

Not only does IPIF fund research to help find a cure for this debilitating disease, but it also offers advice, information, and emotional support to families affected though discussion forums and social media.


IPIF’s first Fabrily fundraising campaign featured a variety of shirt styles and ended up selling over 100 different items generating over £500 GBP/€650 EURO/$800 USD.


IPIF’s President and fundraising coordinator, Laura Richter, offers insight and tips on IPIF’s fundraising experience through Fabrily.

Can you give us a bit more information on your organization?
Susanne Bross Emmerich whose extended family gave birth to a baby girl with Incontinentia Pigmenti, founded IPIF in 1995. Susanne made a promise to her “that when she was old enough to have her own children the mysteries of IP will have been uncovered, and she would not have to suffer the experiences of her parents.” The Foundation initially was named National Incontinentia Pigmenti Foundation, (NIPF) it wasn’t until June 1, 2001 that the new name Incontinentia Pigmenti International Foundation, (IPIF) was adopted. This name change occurred because in 1996 Susanne organized the International IP Research Consortium (IIPRC), a Consortium which after much dedicated time and work with the assistance of volunteering families world wide, and the generous donations of others located IP on the NEMO gene. This was an enormous breakthrough for Incontinentia Pigmenti and now more is known and pregnancies can be tested prior to birth. The first step in her promise was completed, but there is much work still needed before we will know everything about IP leading someday the proper diagnosis, treatment and possibly a cure.

The foundations physical location is in New York, NY USA. On May 1, 2014, I was honored when asked to begin running the foundation and I hope to continue to do so for many years to come. I must add that our Foundation is a family. IPIF families also volunteer with me in the efforts to improve the futures of all individuals afflicted with IP. Without our volunteering families we could never have come as far as we have or go as far as we hope too. 

Congratulations on your successful campaign – how will your organization use the funds that have been raised?
We ran this T-shirt campaign along side with an additional booster and 5K live and virtual events. With the monies raised from all of our efforts combined we are helping fund a much-needed IP Biobank. The IP Biobank will be a great opportunity for all patients around the world to be included in new therapeutic clinical trial projects. It will give scientist around the world who do not have access to a sufficient number of cases the research tools they need to continue with their work and the ability to start new projects. The IP Biobank is the future all those affected. If you would like to learn more about this wonderful project we encourage you to visit the IP BioBank website http://www.igb.cnr.it/ipgb

How did you initially hear about Fabrily and why did you decide to use them?
We found Fabrily while doing an online search of a T-shirt campaign company that would ship internationally. After reviewing several options we thought Fabrily offered exactly what we would need for our families with a great product that shipped to 178 various countries around the world. What made Fabrily our choice over the other companies was their ability to ship worldwide along with offering our supporters more then one shirt style.

 Overall how was your campaigning experience ? Would you recommend Fabrily to other organizations?
I personally could not be happier with Fabrily. They offered personal assistance, returned every email sent in a very timely fashion and went out of their way to help us on various social media sites with complimentary advertisements for use. Feedback from our families was also very positive when they individually contacted Fabrily. We will without a doubt share our experiences at Fabrily with others.

What were some of the specific promotional methods you used for your campaign?
I started with our IPIF family members. With their help and by us all working together we were able to make this campaign successful. The campaign started in our private support group for IP on Facebook. From there we created a public Facebook event where members and friends of friends were able to send more and more invitations to join us. We also kept communicating with everyone about the progress of the campaign and encouraged sharing through personal Facebook profiles, Facebook groups/pages, email, personal phone calls to family. We additionally made our campaign efforts known on twitter and IP family blogs.

Were there any particular aspects of using Fabrily that really stood out to you?
Kate Shoaf (Fabrily Campaign Manager) went above and beyond any company contact I have ever worked with before. She sent a friend request to our Ipif IP Facebook profile and joined the event we had created and followed us on Twitter. Her communications with myself and other IP family members was more then expected and appreciated. The complementary advertisement banner Fabrily created for us was a priceless tool. For countless years to come we will use their design with our awareness ribbon and we thank Fabrily for this additional gift of Hope.

The Fabrily Team would like to congratulate IPIF on their outstanding fundraising efforts and the wonderful work their organization does. For more on successful fundraisers, promotional tips, video tutorials, and campaign insights please visit our Success Stories page.



Crowd-funding & Fabrily: Learn how Chantell used sites like JustGiving & Fabrily to save Lola the French bulldog!


Chantell is a wife, mother, and adamant dog lover. Her family has rescued four dogs to date and one of these lucky pooches is named Lola. She’s an adorable French bulldog but was born with abnormally shaped ulna bones in her legs and her elbows are luxated. Because Lola is unable to walk she was going to be put to sleep but Chantell decided to save Lola and pay to have her legs operated on. After the costly surgery Lola needs intensive courses of physiotherapy, hydrotherapy and underwater treadmill exercise to learn how to walk on her own.

Determined to provide Lola with a long, happy, and healthy life Chantell has turned to fundraising sites to help give Lola this much needed therapy so that she will one day be able to walk and play like all puppies love to do!


Chantell launched her first Fabrily campaign in July 2014 and since then has launched several more. To date Chantell has raised hundreds of pounds but she’s not stopping there! Lola’s treatment is long-lasting and costly but the Fabrily team is happy to help Chantell and her family to continue to raise funds for the treatment.


Lola currently has several Fabrily campaigns running; you can visit her campaign page and purchase an item to help cover the costs of treatment. You can also visit her JustGiving and GoFundMe campaigns if you would like to make a donation.


After several successful fundraising campaigns Chantell kindly provides us with insight and advice on raising funds though sites like JustGiving and Fabrily.

Why did you decide to use crowd-funding sites to raise funds for Lola? Which ones have you used so far?
   My husband James and I decided to give Lola a loving home, we knew when we saw Lola how severe her abnormalities in her front legs but didn’t realize how much the surgery to get Lola better would cost. Our vet booked us a consultation at the Queen Mother animal hospital in Barnet the day we rehomed Lola. After the £600 (including tests) consultation we were told that Lola couldn’t wait any longer and needed surgery ASAP. Lola’s problem is very rare and something the veterinary team had never seen before, the estimate of the surgery cost was £4000 to £6000 (not including the cost of further radiographs after Lola’s surgery and her physiotherapy and hydrotherapy treatments). We knew we didn’t have that kind of money so decided we had to act quickly to begin fundraising. 
   I began searching for ideas on how to fundraise as I had never done this before. I began searching the internet and my vet also gave me the idea of using JustGiving.com. I looked up JustGiving and found they had a thing called the Yimby project for people that need to fundraise for themselves or the community but you have to set a realistic target due to only having 30 days to raise that amount or the project falls through. I set it up straightaway with a goal of £1000 but in the campaign description I added that we needed to raise more than that.
   Then as I had been searching the web for more fundraising ideas I came across Fabrily, my niece had drawn a picture of Lola so I started a t-shirt campaign using her drawing. I had never done this before but once I started I began to get a lot of support and advice from Fabrily about my design; their designer used our drawing but made it bolder and higher resolution. Kate (Fabrily campaign manager) was really helpful suggesting colours and guiding me along the way.

How has the experience been? What have you learned since launching your first campaigns on JustGiving and GoFundMe – can you share any tips or advice for using these sites?
   I have learnt a lot really. I didn’t realize how many kind people there are across the world. To promote Lola’s JustGiving page and Fabrily campaign I created an Instagram, Twitter, and Facebook page for Lola; adding photos and videos of Lola before surgery and on her journey to recovery.
   Lola began to become very popular and people all over the world have been very kind with lovely comments on Lola’s photos and also a lot of them donating; these are people I have never met some donating as much as £100 just for the pure love of Lola. I have found it a real eye-opener and it has really shown me how nice people are. I haven’t launched gofundme properly due to still having the just giving page running, but was advised by some people through Instagram that gofundme is very, very popular especially to the Americans. I have found all the social media sites good but my favourite and most successful is Instagram. 

How did you come across Fabrily initially? Why did you decide to launch a Fabrily campaign?
We did try having some items printed with vistaprint but the quality and hassle was not ideal. I started looking into having more items printed locally but I’m so busy caring for my husband who is suffering from pulmonary embolism and deep vein thrombosis, our two teenage children, and now we have Lola to care for 24/7 on her road to recovery and our other dogs…I just didn’t have the time to be selling t-shirts myself and posting them out! Then there was also the risk of not being able to sell them all and being left to cover the costs of the shirts ourselves…so when I came across Fabrily I was really happy as the work is taken off of you; they handle the payment collection, order production, and shipment of the items. Fabrily does it all for you and there’s no costs or risk involved!

How has your experience with Fabrily been so far? Would you recommend the platform to others who are also looking to raise funds for a special cause?
I have been really happy with Fabrily and the support and guidance I have received. I would definitely recommend Fabrily to anyone looking to fundraise. I have had 3 successful campaigns with them so far and have 2 more running currently, one f them being with a new design of Lola. I am in process of setting up another campaign with Kate from Fabrily with a third design for Lola. I will launch plenty more in the future.

You’ve done a great job promoting your campaigns online – can you offer any tips or advice on promoting Fabrily campaigns? Are there any specific techniques you’ve used?
I have just set up Instagram, Facebook and twitter account for Lola. I use photos to promote the campaigns which has proven really effective and as the days get nearer to the end of the campaign I post reminders and photos on the sites which really helps too. Now we have had 3 successful campaigns I set up a hashtag page #isupportlolaslegs and I ask anyone that has bought a Lola t-shirt, hoodie or phone case to post a selfie with their goods with this hashtag so that everyone can see. I have found that to really help as once people see a finished product they tend to want one and we have more orders coming in.

How is Lola’s treatment going? Do you plan to continue using crowd-funding sites and platforms in the future to help cover the costs of her treatment?
Lola is still recovering from surgery and has a long, long way to go yet. I have to carry out physiotherapy on her myself 3 times a day and we visit the hospital twice a week for physiotherapy and hydrotherapy. Lola has little muscle in her legs and still has limited range of movement which we are trying to improve. As Lola progresses she will begin underwater treadmill to get her walking motion going. She began her daily walk this week but only 5 minutes at a time with the help of a help-em-up harness and handle which enables us to hold Lola up in a normal position but not letting her apply pressure on her front legs as she just isn’t strong enough yet and is still bent forward quite a lot. We are hoping by Christmas she will be able to walk almost properly. We plan to continue with our campaigns until we reach our target.

The Fabrily team would like to congratulate Chantell and her family on their successful fundraising efforts and wishes Lola a fast recovery! To stay up-to-date on Lola’s road to recovery please follow her on Instagram, Twitter, and Facebook!